Zebra Functional Wellness
About
Zebra Functional Wellness – What I Offer I provide telehealth consultations focused on chronic invisible illness with a special emphasis on Ehlers-Danlos Syndrome (EDS). My approach is patient-centered, functional, and holistic, helping clients: Understand and manage symptoms of chronic illness Learn self-advocacy for proper diagnosis and care Implement preventative wellness strategies Conserve energy and optimize daily function Prevent injuries in sports, work, and daily activities Receive guidance on EDS-specific exercise, contraindications, and safety Make referrals as appropriate I offer flexible session options, from quick 20 minute check-ins to full evaluations and follow-up packages, so care is accessible, personalized, and sustainable.
EDS Healthcare in New York
The NYIT EDS/Hypermobility Treatment Center operates in Old Westbury and Central Islip, offering specialized rehabilitation and treatment. Mount Sinai South Nassau Chiari EDS Center in Oceanside focuses on EDS with Chiari malformation. Weill Cornell provides pain management expertise. New York Medicaid covers genetic testing with prior authorization. Wait times at major programs can be 6 months or longer.
Both EDS Centers of Excellence are on Long Island, leaving upstate New York significantly underserved. Patients in Buffalo, Syracuse, Rochester, and the Adirondacks face drives of 4-6+ hours to reach these programs. Wait times of 6 months or more are common. Rural upstate access is very limited, and telehealth is important for follow-up care.
Finding Other for EDS
Mention your EDS diagnosis at the start of any appointment so the provider can factor connective tissue fragility into their evaluation and treatment approach.