Neurology
6 EDS specialists in this category
Neurologists experienced with EDS evaluate and treat the neurological complications common in connective tissue disorders, including dysautonomia, POTS, Chiari malformation, and craniocervical instability. Ask whether the neurologist has experience with tilt-table testing for dysautonomia and upright MRI for craniocervical instability — standard imaging may miss these EDS-related conditions. Neurological issues in EDS can include small fiber neuropathy, intracranial hypertension, and tethered cord syndrome. A neurology evaluation often involves autonomic function testing, nerve conduction studies, and specialized imaging.
Neurology specialists are most concentrated in Arizona (1), Illinois (1), Michigan (1).
Last updated 2026-04-18
About Neurology for EDS Patients
Neurological issues in EDS go well beyond headaches. Loose connective tissue can affect the spine and skull junction, compress nerves, and disrupt the autonomic nervous system that controls heart rate, digestion, and temperature regulation. A neurologist who knows EDS will look for these EDS-specific problems that standard neurology exams often miss.
What to Expect
The neurologist will perform a physical exam testing your reflexes, sensation, strength, and coordination. They may order specialized imaging like an upright MRI (which shows problems that lying-down MRIs can miss) or autonomic function tests. Bring a list of neurological symptoms including headaches, numbness, tingling, dizziness, and any changes in bladder or bowel function.