EDS Blog

A practical guide to finding EDS-knowledgeable providers — the directories to search, the specialists to look for, what to expect at your first appointment, and how to evaluate whether a provider is the right fit.

Atlanta has experienced EDS providers including a Harvard-trained geneticist, EDS-aware physical therapists, and rheumatologists with connective tissue expertise. Here's how to find the right care.

Denver is home to an EDS Society Center of Excellence at Children's Hospital Colorado, experienced adult providers, and 54 listed specialists across the state. Here's how to find the right care.

Portland has 53 listed EDS specialists, OHSU's academic medical center, and dedicated EDS clinics offering in-person and telehealth care. Here's how to find the right provider.

Los Angeles is home to two EDS Society Centers of Excellence, dedicated EDS clinics, and major academic medical centers with connective tissue expertise. Here's how to find the right care in LA.

New York is home to two EDS Society Centers of Excellence, 69 listed specialists across 20 cities, and some of the most experienced EDS providers in the country. Here's how to find the right care.

EDS is not an autoimmune disease, but it often comes up alongside arthritis, fibromyalgia, and autoimmune conditions. Here's what the overlap actually means — and what it doesn't.

A clear guide to what at-home EDS screening can and can't do — symptom checklists, the Beighton score, the Five-Part Questionnaire, blood tests, and when to see a doctor.

What EDS-specific physical therapy actually looks like, which exercises help, what to avoid, and how to find a therapist who understands hypermobility.

A practical guide to managing EDS — what works, what doesn't, and how to build a care plan that actually helps. Covers physical therapy, medications, diet, pacing, and more.

Why EDS and POTS so often occur together, how the conditions interact, what treatment looks like when you have both, and how to find providers who understand the overlap.

A plain-language guide to genetic testing for EDS — what it can and can't tell you, how it works, what it costs, and why hEDS still can't be confirmed by DNA.

Practical advice for finding EDS-knowledgeable providers — from connective tissue clinics and telehealth options to what to bring to your first appointment and what to do when there are no specialists nearby.

A guide to the doctors who diagnose and manage EDS — geneticists, rheumatologists, physical therapists, pain specialists, and the other providers who make up a typical EDS care team.