EDS Specialists in Illinois
28 specialists across 16 cities
Despite being home to one of the country's largest cities, Illinois has a surprising gap in dedicated EDS care. Chicago has been described as an "EDS physician desert," with no dedicated multi-specialty EDS center. Patients often travel to Indiana for specialized care.
If you are seeking EDS care in Illinois, connecting with knowledgeable individual providers and considering out-of-state programs are practical steps while the state's EDS landscape develops.
Last updated 2026-04-18
Frequently Asked Questions
Where can I get an EDS diagnosis in Illinois?
Illinois does not have a dedicated EDS center. Individual providers in the Chicago area, such as Dr. Matthew Mandell, see EDS patients. For comprehensive multidisciplinary EDS care, Indiana University Health's EDS & HSD Clinic in Indianapolis is the nearest Center of Excellence. Nationwide Children's Hospital in Columbus, Ohio is another option.
Why is it so hard to find EDS specialists in Chicago?
Despite Chicago's large medical community, EDS remains underdiagnosed and undertreated. There is no dedicated multi-specialty EDS center in the city, which is a recognized gap. The EDS Illinois support group can help connect you with individual providers who have experience with the condition.
Are there EDS support groups in Illinois?
Yes. EDS Illinois is an active support group that can connect you with other patients and help you find EDS-knowledgeable providers in the state.
Cities with 2+ Specialists
Specialist Types in Illinois
Common Treatment Areas
Bolingbrook, IL (1)
Chicago, IL (11)
Alternative Pain Care - Chicago
Chicago, IL
Based in Chicago, Illinois, this chiropractic practice focuses on hypermobility and chronic pain. At Alternative Pain Care we use the latest...
Chicago Arthritis and Regenerative Medicine
Chicago, IL
Chicago Arthritis and Regenerative Medicine in Chicago, IL is a rheumatology provider specializing in care for Ehlers-Danlos syndrome and...
Chicago Integrative Movement Specialists
Chicago, IL
Based in Chicago, Illinois, this movement / exercise practice. Chicago Integrative Movement Specialists was established in the early 2000s...
Elevate Physical Therapy
Chicago, IL
Based in Chicago, Illinois, this physical therapy practice focuses on hypermobility, chronic pain and TMJ disorders. Welcome to Elevate...
Global Health Partners at Northwestern
Chicago, IL
Global Health Partners at Northwestern is a private, fee for service practice with four physicians (2 PM&R docs, 1 anesthesiologist, and 1...
Groove Pelvic Health & Wellness
Chicago, IL
Laura is a queer-identified Pelvic Health Physical Therapist and AASECT Certified Sexuality Counselor. She is passionate about helping...
Lakeshore Psychological Services
Chicago, IL
Lakeshore Psychological Services is the solo practice of Leslie Rubin, PhD, a licensed clinical psychologist in Chicago. Dr. Rubin...
Little Seed Wellness
Chicago, IL
It’s hard to feel magical and awesome when your sparkle is being dulled by a world that actively works against you. The therapeutic space is...
Lurie Children's Hospital
Chicago, IL
We have a combined connective tissue disorders program that involves cardiology and genetics. We specialize in treating patients with VEDS,...
Octavia Kincaid
Chicago, IL
Primary interests are Autonomic Disorders and Pain, which leads to additional focus on Hypermobility related syndromes, including HSD/hEDS....
Resilience Psychological Services
Chicago, IL
* About Us * Meet the Team * Values, Mission, and Vision * Anti-Oppressive Principles * Terms to Know * Services * Specialties * Approaches...
Elmhurst, IL (1)
Evanston, IL (2)
Link Physical Therapy
Evanston, IL
Link Physical Therapy is a physical therapy provider in Evanston, Illinois with experience treating Ehlers-Danlos Syndrome. Specializes in...
Living Well Psychotherapy
Evanston, IL
As a counselor, I prioritize the therapeutic relationship through a strengths-based, holistic approach while implementing trauma-informed...
Grayslake, IL (1)
Gurnee, IL (1)
Lincolnwood, IL (1)
Lombard, IL (1)
Mattoon, IL (1)
Oakbrook Terrace, IL (1)
Park Ridge, IL (1)
Peoria, IL (1)
Schaumburg, IL (1)
St. Charles, IL (1)
Urbana, IL (1)
Wheaton, IL (2)
Chicago Pelvic Health and Wellness
Wheaton, IL
At Chicago Pelvic, we are exclusively staffed with Board Certified Doctors of Pelvic Floor Physical Therapy. Our team of experts has...
Complete Chiropractic Care
Wheaton, IL
Based in Wheaton, Illinois, this chiropractic practice focuses on hypermobility and chronic pain. At Alternative Pain Care we use the latest...