About

EDS Directory is a searchable list of providers across the United States who work with patients who have Ehlers-Danlos Syndrome or related hypermobility conditions. The purpose is straightforward: help you find care faster. This site is a navigation tool, not a medical resource.

About the Directory

EDS Directory is an independent project built and maintained by Thomas Gregory and his wife. It is not affiliated with any medical organization, advocacy group, or commercial entity. We built it because finding EDS-aware providers shouldn't require hours of patchwork searching across scattered resources, and there was no comprehensive, easy-to-use directory filling that gap.

What This Directory Is

EDS Directory is a searchable, browsable list of providers, organized so you can filter by location and by type of care. This site is designed to help you find care, not to provide diagnosis, treatment guidance, or detailed medical education.

Every listing includes the basics you need to build a shortlist: name, location, category, and (where available) contact information and a website link. From there, you reach out to the provider directly.

Who This Site Is For

This site is built for people who are already at the stage of looking for care, comparing provider types, or narrowing down where to go next. That includes:

• People with an EDS diagnosis who are looking for ongoing care
• People exploring a possible diagnosis and trying to identify the right kind of specialist
• Caregivers, parents, and partners searching on behalf of someone else
• Clinicians and patient advocates expanding a referral list

If you're still in the background-research phase, patient organizations are usually better suited to that work. This site is for the step after: finding someone to actually see.

How to Use the Directory

There are three ways to find a provider.

Search. If you already know what you need, whether that's a specific provider type or a city, type it into the search bar at the top of the page. Search matches on provider names, locations, specialties, and keywords.

Browse by State. You can browse providers by state to see listings available in a given area, grouped by category. This is useful when you want a quick overview of options near you.

Browse by Category. If the type of provider matters more than the location, start with categories. You'll see listings of that type from across the directory, which is useful when you're open to traveling or to consulting remotely.

Most visitors use some combination of the three: narrowing by state, then by category, or the reverse.

What You'll Find Here

The directory leans toward the kinds of providers most patients need to see on an ongoing basis. Listings may include:

• Physical therapists, occupational therapists, and pain specialists
• Pelvic floor therapists, dentists, and allied providers who work with hypermobile patients
• Rheumatologists, cardiologists, and other physicians who see EDS patients
• Geneticists and connective tissue specialists
• Clinics and multidisciplinary centers

Some providers offer in-person care, some offer telehealth, and some offer both. Where we can, we indicate this on individual listings.

Not every provider listed specializes exclusively in EDS. Many have experience treating patients with EDS or hypermobility as part of a broader practice. Where we can, we indicate the distinction, but you should always confirm directly with the provider before booking.

Finding the Right Provider Often Takes Effort

EDS care is unevenly distributed. Some states have multiple specialists; others have very few. Many patients end up traveling, sometimes across state lines, to see the right provider for diagnosis, complex cases, or procedures. This directory is built with that reality in mind. Browsing by category rather than only by location is often the fastest way to see what's available, wherever it happens to be.

How Listings Are Compiled

Listings are based on publicly available information about providers who indicate experience with Ehlers-Danlos Syndrome or hypermobility — drawn from sources like provider websites, professional directories, and patient advocacy resources. Providers can update or remove their listing at any time using the links on each listing page, or by contacting us at thomasgregory@edsdirectory.com.

A Few Important Notes

This site is informational only. Nothing here is medical advice, a recommendation, or a substitute for consultation with a qualified healthcare professional. Always talk to a licensed provider before making decisions about your care.

Inclusion is not endorsement. A provider appearing in this directory is not a referral, vetting, or endorsement. We do not evaluate clinical quality, outcomes, or fit. Verify credentials, experience, and insurance coverage directly with any provider before your first appointment.

We are not involved in payments, billing, or insurance. EDS Directory has no role in financial transactions between patients and providers. We do not process payments, verify insurance coverage, negotiate fees, or have any business relationship with the providers listed. All matters of cost, billing, insurance acceptance, and payment are between you and the provider directly. Confirm coverage and fees with the provider's office before any appointment.

Information changes. Providers move, retire, change practices, and shift their focus. We update listings when we can, but some details may be out of date. If you spot an error, or a provider who should be added, let us know.

Questions, corrections, or suggestions: thomasgregory@edsdirectory.com.