EDS Specialists in California

74 specialists across 53 cities

California offers some of the strongest EDS resources in the country, with two EDS Society Centers of Excellence and multiple university programs specializing in connective tissue disorders. From Stanford's cardiovascular program to specialized rehabilitation clinics in Southern California, patients have access to a wide range of expertise.

Despite this, access is uneven — urban centers have concentrated resources while rural areas of the state face significant gaps in specialist availability.

Last updated 2026-04-18

EDS Resources in California

  • Casa Colina Hospital & Centers for Healthcare, Pomona (EDS Society Center of Excellence)
  • Re+active Therapy and Wellness, El Segundo (EDS Society Center of Excellence)

University Genetics Programs

  • Stanford University — Cardiovascular Connective Tissue Disorders Program
  • UC Davis Medical Center — Connective Tissue Clinic
  • UCSF Medical Center — Medical Genetics

Support Groups

  • Ehlers-Danlos Support Group of Silicon Valley
  • Los Angeles Area EDS Support Group
  • San Diego Ehlers Danlos Support Group
  • SFV Zebras (San Fernando Valley)
  • Fresno/Clovis EDS Support Group
  • Humboldt EDS/CTD Group

Frequently Asked Questions

Where can I get an EDS diagnosis in California?

California has multiple options. Casa Colina Hospital in Pomona and Re+active Therapy in El Segundo are EDS Society Centers of Excellence. Stanford, UC Davis, and UCSF all have connective tissue or genetics programs that can evaluate EDS. Children's Hospital Los Angeles handles pediatric cases. Your starting point will depend on your location and insurance.

Does Medi-Cal cover genetic testing for EDS?

Yes. Medi-Cal covers genetic testing for EDS subtypes when there is documented medical necessity. Keep in mind that hEDS, the most common type, is diagnosed clinically — there is no genetic test for it. Genetic testing is used to identify rarer subtypes like vascular EDS (vEDS).

What are the wait times for EDS specialists in California?

Wait times at major programs like Stanford, Casa Colina, and UCSF can range from 3 to 6 months or more. Requesting a referral early and getting on multiple waitlists can help. Some providers offer telehealth consultations that may have shorter wait times.

Cities with 2+ Specialists

Specialist Types in California

Common Treatment Areas

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Berkeley, CA (2)

Beverly Hills, CA (3)

Camarillo, CA (1)

Century City, CA (1)

Corte Madera, CA (1)

Costa Mesa, CA (1)

Cupertino, CA (1)

El Cerrito, CA (1)

El Segundo, CA (1)

Encinitas, CA (1)

Fresno, CA (1)

Fullerton, CA (1)

Grass Valley, CA (1)

Irvine, CA (3)

Lafayette, CA (1)

Laguna Woods, CA (1)

Los Angeles, CA (1)

Los Gatos, CA (2)

Mission Viejo, CA (1)

Morro Bay, CA (1)

Mountain View, CA (1)

Murrieta, CA (1)

Newport Beach, CA (2)