EDS Specialists in New York

32 specialists across 16 cities

New York has two EDS Society Centers of Excellence on Long Island — Mount Sinai South Nassau Chiari EDS Center in Oceanside and the NYIT EDS/Hypermobility Treatment Center in Old Westbury. These programs provide comprehensive multidisciplinary care for EDS and related conditions.

While the New York City metro area has strong resources, patients in upstate New York face significant gaps in specialist availability and may need to travel considerable distances for dedicated EDS care.

Last updated 2026-04-18

EDS Resources in New York

  • Mount Sinai South Nassau Chiari EDS Center, Oceanside (EDS Society Center of Excellence)
  • NYIT EDS/Hypermobility Treatment Center, Old Westbury (EDS Society Center of Excellence)

Support Groups

  • CNY EDSers (Central New York)
  • The Hudson Valley EDS Support Group

Frequently Asked Questions

Where can I get an EDS diagnosis in New York?

The NYIT EDS/Hypermobility Treatment Center (Old Westbury and Central Islip) and Mount Sinai South Nassau Chiari EDS Center (Oceanside) are both EDS Society Centers of Excellence. Weill Cornell offers pain management for EDS patients. For upstate patients, these programs are a significant drive, so telehealth consultations may be a good starting point.

Does New York Medicaid cover genetic testing for EDS?

Yes. New York Medicaid covers genetic testing for connective tissue disorders with documented medical necessity and prior authorization. Your referring provider will need to submit documentation. Remember that hEDS is diagnosed clinically — genetic testing applies to rarer subtypes.

What are the wait times for EDS programs in New York?

Wait times at the NYIT and Mount Sinai South Nassau programs can be 6 months or more. Getting your referral submitted early is important. Some providers offer telehealth consultations with shorter wait times, and local physical therapists familiar with hypermobility can provide supportive care in the interim.

Cities with 2+ Specialists

Specialist Types in New York

Common Treatment Areas

EDS Articles & Guides

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Amherst, NY (1)

Armonk, NY (1)

Astoria, NY (1)

Brooklyn, NY (2)

Carle Place, NY (1)

Kingston, NY (1)

Manhattan, NY (16)

Nassau County, NY (1)

Oceanside, NY (1)

Old Westbury, NY (1)

Poughkeepsie, NY (1)

Rochester, NY (1)

Slingerlands, NY (1)

Syracuse, NY (1)