EDS Specialists in New York
25 specialists across 10 cities
New York has two EDS Society Centers of Excellence on Long Island — Mount Sinai South Nassau Chiari EDS Center in Oceanside and the NYIT EDS/Hypermobility Treatment Center in Old Westbury. These programs provide comprehensive multidisciplinary care for EDS and related conditions.
While the New York City metro area has strong resources, patients in upstate New York face significant gaps in specialist availability and may need to travel considerable distances for dedicated EDS care.
Last updated 2026-05-04
EDS Resources in New York
- Mount Sinai South Nassau Chiari EDS Center, Oceanside (EDS Society Center of Excellence)
- NYIT EDS/Hypermobility Treatment Center, Old Westbury (EDS Society Center of Excellence)
Support Groups
- CNY EDSers (Central New York)
- The Hudson Valley EDS Support Group
Frequently Asked Questions
Where can I get an EDS diagnosis in New York?
The NYIT EDS/Hypermobility Treatment Center (Old Westbury and Central Islip) and Mount Sinai South Nassau Chiari EDS Center (Oceanside) are both EDS Society Centers of Excellence. Weill Cornell offers pain management for EDS patients. For upstate patients, these programs are a significant drive, so telehealth consultations may be a good starting point.
Does New York Medicaid cover genetic testing for EDS?
Yes. New York Medicaid covers genetic testing for connective tissue disorders with documented medical necessity and prior authorization. Your referring provider will need to submit documentation. Remember that hEDS is diagnosed clinically — genetic testing applies to rarer subtypes.
What are the wait times for EDS programs in New York?
Wait times at the NYIT and Mount Sinai South Nassau programs can be 6 months or more. Getting your referral submitted early is important. Some providers offer telehealth consultations with shorter wait times, and local physical therapists familiar with hypermobility can provide supportive care in the interim.
Cities with 2+ Specialists
Specialist Types in New York
Common Treatment Areas
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Brooklyn, NY (2)
Ashley L Berry Psychotherapy
7912 12th Avenue, Brooklyn, NY
As a licensed psychotherapist (LMHC) living with Ehlers-Danlos Syndrome, I have a profound understanding of the unique challenges that...
Inspira Physical Therapy
275 4th Ave, Brooklyn, NY
Inspira Physical Therapy & Pilates in Park Slope runs a dedicated program for the Ehlers-Danlos syndromes and hypermobility spectrum...
Carle Place, NY (1)
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Manhattan, NY (15)
Fortuna Physical Therapy
32 Union Square East, Manhattan, NY
Based in New York, New York, this physical therapy practice focuses on hypermobility, chronic pain and more. As a long-time mindfulness...
Forward Focus Physical Therapy
129 W 29th Street, Manhattan, NY
Forward Focus Physical Therapy is a solo-practitioner clinic in Manhattan's Chelsea neighborhood that explicitly welcomes patients with...
Hand in Hand Rehabilitation - Manhattan
153 E 87th St 1A, Manhattan, NY
Hand in Hand Rehabilitation is an occupational therapy practice with offices on Manhattan's Upper East Side and in Carle Place on Long...
Helen Kim, DPT PLLC Physical Therapy
155 West 72nd Street 606, Manhattan, NY
Helen Kim Physical Therapy and Wellness is an Upper West Side practice focused on pelvic floor physical therapy, with a detailed clinical...
Inspira Physical Therapy - Midtown Manhattan
2 W 46th St, Manhattan, NY
Inspira Physical Therapy's Midtown Manhattan office brings the same EDS and hypermobility-focused care as the Brooklyn Inspira clinic to a...
Manhattan Pain Medicine, PLLC
2 5th Ave, Manhattan, NY
Manhattan Pain Medicine is a multidisciplinary pain practice in Greenwich Village with a particular focus on hypermobility and the...
New York Dynamic Neuromuscular Rehabilitation & Physical Therapy
11 West 25th Street, Manhattan, NY
New York Dynamic Neuromuscular Rehabilitation is a Manhattan physical therapy and rehabilitation clinic that treats patients with joint...
Orthopedic Movement Physical Therapy
315 Madison Avenue, Manhattan, NY
Orthopedic Movement Physical Therapy (OMPTNY) is a Midtown Manhattan clinic led by Miho Urisaka, PT, DPT, and listed in the Ehlers-Danlos...
SerendiPT
244-250 West 54th Street, Manhattan, NY
SerendiPT is a boutique physical therapy practice led by two senior therapists specializing in hypermobility, Ehlers-Danlos Syndrome (EDS),...
Weill Cornell Medicine Pain Management - Hudson Yards
504 West 35th St, Manhattan, NY
Weill Cornell Medicine's Division of Pain Management maintains a dedicated Ehlers-Danlos syndrome patient page and identifies EDS as an area...
Weill Cornell Medicine Pain Management - Lower Manhattan
156 William Street, Manhattan, NY
Weill Cornell Medicine's Division of Pain Management maintains a dedicated Ehlers-Danlos syndrome patient page and identifies EDS as an area...
Weill Cornell Medicine Pain Management - Midtown East
240 East 59th Street, Manhattan, NY
Weill Cornell Medicine's Division of Pain Management maintains a dedicated Ehlers-Danlos syndrome patient page and identifies EDS as an area...
Weill Cornell Neurological Surgery / Och Spine (EDS)
1305 York Avenue, Manhattan, NY
Och Spine at NewYork-Presbyterian and the Weill Cornell Medicine Center for Comprehensive Spine Care maintain a dedicated page for...
Zion PT
310 West 72nd Street, Manhattan, NY
Zion Physical Therapy's Upper West Side clinic, on West 72nd Street, is one of the practice's two Manhattan offices, alongside its Upper...
Zion PT
241 East 86th St, Manhattan, NY
Zion Physical Therapy's Upper East Side clinic, on East 86th Street, is one of the practice's two Manhattan offices, alongside its Upper...