Verb. Movement Rehabilitation
About
Verb. offers a holistic approach by bridging the gap between physical therapy and the Pilates method. We specialize in neurological conditions, connective tissue disorders and whole-body wellness, nurturing the mind-body connection through uniquely tailored sessions. Cailey specializes in chronic pain and neurological injury. Her client population has included Ehlers-Danlos Syndrome, POTS, post-operative joint replacements, Multiple Sclerosis, Parkinson’s and other moderate to high-level neurological conditions. Her goal is to facilitate embodied cognition and to empower clients to take back their right to physical autonomy.
EDS Healthcare in New York
The NYIT EDS/Hypermobility Treatment Center operates in Old Westbury and Central Islip, offering specialized rehabilitation and treatment. Mount Sinai South Nassau Chiari EDS Center in Oceanside focuses on EDS with Chiari malformation. Weill Cornell provides pain management expertise. New York Medicaid covers genetic testing with prior authorization. Wait times at major programs can be 6 months or longer.
Both EDS Centers of Excellence are on Long Island, leaving upstate New York significantly underserved. Patients in Buffalo, Syracuse, Rochester, and the Adirondacks face drives of 4-6+ hours to reach these programs. Wait times of 6 months or more are common. Rural upstate access is very limited, and telehealth is important for follow-up care.
Finding Neurology for EDS
Ask whether the neurologist has experience with tilt-table testing for POTS and upright MRI for craniocervical instability, since standard imaging often misses EDS-related neurological issues.