UVA Health EDS & Hypermobility Disorders Center
About
UVA Health EDS & Hypermobility Disorders Center provides diagnosis, genetic testing and specialized care for patients with Ehlers-Danlos Syndrome (EDS) or other Hypermobility Spectrum Disorders (HSD). Inspiring hope, relieving suffering and advancing the education and science of conditions unique to patients and their families with EDS or HSD is our primary mission. UVA Health is a multidisciplinary academic medical center with specialists in over 55 specialty and subspecialty clinics including necessary clinical services such as Neurology, Cardiology, Genetics, Physical Therapy, Occupational Therapy and Integrative Medicine to name a few.
EDS Healthcare in Virginia
The UVA Health EDS and Hypermobility Disorders Center in Charlottesville, founded by Dr. Dacre Knight (who came from Mayo Clinic), is a significant new resource for the state and region. It received over 550 patient requests within its first month of opening. Bethesda Physiocare in nearby Maryland is an EDS Society Center of Excellence. Northern Virginia patients also have access to D.C.-area programs including Johns Hopkins.
Central and northern Virginia patients have good access to the UVA program in Charlottesville and D.C.-area resources. However, rural western Virginia and the southeastern Tidewater region face more limited options. The UVA program's rapid demand suggests wait times may be significant. Hampton Roads patients have a local support group but limited specialist access.
Finding Genetics / Genetic Counseling for EDS
Ask whether the geneticist evaluates for all EDS subtypes and can coordinate genetic testing with your insurance before ordering panels.