UPMC and University of Pittsburgh Scleroderma Center
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EDS Healthcare in Pennsylvania
Penn State Health's EDS Program in Hershey is an EDS Society Center of Excellence. CHOP in Philadelphia operates both a Cardiovascular Connective Tissue Disorders Clinic and the Roberts Individualized Medical Genetics Center (Roberts IMGC). Penn Medicine in Philadelphia has additional EDS resources. The Pennsylvania Association of Genetic Counselors supports genetic testing access statewide.
Central and eastern Pennsylvania have strong resources, but western Pennsylvania (Pittsburgh area) and the rural northeast have limited dedicated EDS programs. Pittsburgh patients may find programs in Columbus, Ohio or at IU Health in Indianapolis more accessible than traveling to Hershey or Philadelphia.
Finding Rheumatology for EDS
Ask whether the rheumatologist uses the 2017 hEDS diagnostic criteria and has experience distinguishing EDS from other hypermobility spectrum disorders.