The Body Lab / Monet Cruz Pilates
About
Polestar Pilates comprehensively trained and nationally certified rehab specialist in Ehlers Danlos hypermobility and other pain conditions. Offering both group reformer classes and private sessions. Additional training in fascia focused Anatomy Trains and EDS Echo training with Jeannie Di Bon who specializes in EDSh, hypermobility spectrum disorder and Pilates.
EDS Healthcare in New York
The NYIT EDS/Hypermobility Treatment Center operates in Old Westbury and Central Islip, offering specialized rehabilitation and treatment. Mount Sinai South Nassau Chiari EDS Center in Oceanside focuses on EDS with Chiari malformation. Weill Cornell provides pain management expertise. New York Medicaid covers genetic testing with prior authorization. Wait times at major programs can be 6 months or longer.
Both EDS Centers of Excellence are on Long Island, leaving upstate New York significantly underserved. Patients in Buffalo, Syracuse, Rochester, and the Adirondacks face drives of 4-6+ hours to reach these programs. Wait times of 6 months or more are common. Rural upstate access is very limited, and telehealth is important for follow-up care.
Finding Movement / Exercise for EDS
Look for instructors with specific hypermobility training who modify exercises to build strength within safe joint range rather than pushing flexibility.