SUNY Upstate PM&R
About
SUNY Upstate PM&R is a pain management / physiatry provider in Syracuse, New York with experience treating Ehlers-Danlos Syndrome. Specializes in hypermobility.
EDS Healthcare in New York
The NYIT EDS/Hypermobility Treatment Center operates in Old Westbury and Central Islip, offering specialized rehabilitation and treatment. Mount Sinai South Nassau Chiari EDS Center in Oceanside focuses on EDS with Chiari malformation. Weill Cornell provides pain management expertise. New York Medicaid covers genetic testing with prior authorization. Wait times at major programs can be 6 months or longer.
Both EDS Centers of Excellence are on Long Island, leaving upstate New York significantly underserved. Patients in Buffalo, Syracuse, Rochester, and the Adirondacks face drives of 4-6+ hours to reach these programs. Wait times of 6 months or more are common. Rural upstate access is very limited, and telehealth is important for follow-up care.
Finding Pain Management / Physiatry for EDS
Ask whether they use multimodal approaches like nerve blocks and low-dose naltrexone rather than relying primarily on opioid prescriptions for EDS pain.