Satriano Physiotherapy & Wellness
About
90% of my new physical therapy patients were misdiagnosed by other practitioners. Many of them in pain and frustrated. It can feel discouraging to attend physical therapy sessions where the therapist simply observes you doing exercises while on their cell phone instead of actively participating in your rehabilitation.
EDS Healthcare in Maryland
Bethesda Physiocare is an EDS Society Center of Excellence specializing in physical therapy for hypermobility. Johns Hopkins Hospital houses the McKusick-Nathans Department of Genetic Medicine and Dr. Howard Levy, a recognized authority on EDS. The NIH Clinical Center in Bethesda runs the Undiagnosed Diseases Program. The University of Maryland Medical Center also has a Connective Tissue Disorders Program.
The Baltimore-Bethesda corridor has excellent EDS resources, but patients in western Maryland, the Eastern Shore, and southern Maryland face longer travel times. Wait times at Johns Hopkins and NIH can be substantial given their national reputation. Insurance coverage for the NIH Clinical Center may differ from standard programs.
Finding Physical Therapy for EDS
When choosing a PT for EDS, ask whether they have experience with hypermobility and use stabilization-first protocols rather than standard stretching routines.