Revive Counseling and Consulting
About
Sometimes it feels like your illness runs your life. Each morning, you wake up wondering if it will be a “bad day” or a “good day” knowing that your body will make that decision. You might have migraines, stomach issues, and even chronic pain. Maybe you’re overwhelmed with managing a chronic illness, organizing doctor’s appointments, and tracking symptoms. You feel embarrassed at the thought of feeling bad when you go out – so you just don’t go out. If you’re Autistic/ADHD/AuDHD, you might hyperfocus on each scary new sensation or worry that you’re “missing something” in your body. Whether you’ve experienced a complicated surgery or just received your hyper-mobility/hEDS diagnosis, painful sensations and emotions can prevent you from feeling fully connected to others and even to yourself. Your body is your first home. It’s where you spend the most time, and you deserve to feel safe in it. Therapy can help you find relief and feel comfortable in your body again. Call 985-441-7550 to schedule your complimentary consultation for therapy or visit www.revivepractice.com.
EDS Healthcare in New York
The NYIT EDS/Hypermobility Treatment Center operates in Old Westbury and Central Islip, offering specialized rehabilitation and treatment. Mount Sinai South Nassau Chiari EDS Center in Oceanside focuses on EDS with Chiari malformation. Weill Cornell provides pain management expertise. New York Medicaid covers genetic testing with prior authorization. Wait times at major programs can be 6 months or longer.
Both EDS Centers of Excellence are on Long Island, leaving upstate New York significantly underserved. Patients in Buffalo, Syracuse, Rochester, and the Adirondacks face drives of 4-6+ hours to reach these programs. Wait times of 6 months or more are common. Rural upstate access is very limited, and telehealth is important for follow-up care.
Finding Mental Health for EDS
Look for a therapist who has worked with chronic illness patients and understands that EDS-related anxiety and depression often have physical triggers, not just psychological ones.