Professional Designation: OT
About
Professional Designation: OT, located in Bismarck, North Dakota, offers EDS-informed care. Private practice that provides alternative therapies for EDS. See website for more details.
EDS Healthcare in Florida
Mayo Clinic Jacksonville's dedicated EDS Clinic is an EDS Society Center of Excellence and serves as the anchor for EDS care in the Southeast. The Florida Association of Genetic Counselors supports genetic testing access statewide. Florida Medicaid covers genetic testing for connective tissue disorders with documented medical necessity.
Florida's size creates significant access disparities. The Mayo Clinic EDS program is in Jacksonville, which means patients in South Florida, Tampa Bay, or the Panhandle face drives of 4-8 hours. Wait times at the Mayo Clinic EDS Clinic can be 6 months or more. Telehealth follow-ups can help after an initial in-person evaluation.
Finding Other for EDS
Mention your EDS diagnosis at the start of any appointment so the provider can factor connective tissue fragility into their evaluation and treatment approach.