Meredith Noble Counseling LLC
About
I offer virtual counseling to those within the state of Oregon. I live with Ehlers-Danlos syndrome, Postural Tachycardia Syndrome, and Mast Cell Activation Disorder. I know the misogyny, hostility, disinterest, gaslighting, and fatphobia that occur routinely within the medical system, and the tolls these can take on mental health—as if the tolls of living with pain and illness aren’t enough! I am here to accompany you in your experiences of chronic illness and chronic pain. We can explore the emotional impacts (like grief, anger, sadness), process experiences of disability and ableism, and help you find moments of contentment and joy despite bodily obstacles. Please visit my website to learn more about me and my services: https://meredithnoble.com As a Professional Counselor Associate, I am supervised by Kelly Prothero, LCSW.
EDS Healthcare in New York
The NYIT EDS/Hypermobility Treatment Center operates in Old Westbury and Central Islip, offering specialized rehabilitation and treatment. Mount Sinai South Nassau Chiari EDS Center in Oceanside focuses on EDS with Chiari malformation. Weill Cornell provides pain management expertise. New York Medicaid covers genetic testing with prior authorization. Wait times at major programs can be 6 months or longer.
Both EDS Centers of Excellence are on Long Island, leaving upstate New York significantly underserved. Patients in Buffalo, Syracuse, Rochester, and the Adirondacks face drives of 4-6+ hours to reach these programs. Wait times of 6 months or more are common. Rural upstate access is very limited, and telehealth is important for follow-up care.
Finding Mental Health for EDS
Look for a therapist who has worked with chronic illness patients and understands that EDS-related anxiety and depression often have physical triggers, not just psychological ones.