Massage Enby/Spa Jones
About
I am a massage therapist with 3 years of experience working on and educating clients with hEDS/HSD and their comorbid conditions such as POTS, Autism, ADHD, MCAS, and a variety of other nerve and chronic pain disorders. I also work with geriatric and pregnant clients. Most of my specialization comes from hands-on experience and independent research. Clients report feeling comfortable and safe in our sessions, and generally claim to experience tension and pain relief for days-weeks after. My office is a safe and welcoming environment for queer and trans clients.
EDS Healthcare in New York
The NYIT EDS/Hypermobility Treatment Center operates in Old Westbury and Central Islip, offering specialized rehabilitation and treatment. Mount Sinai South Nassau Chiari EDS Center in Oceanside focuses on EDS with Chiari malformation. Weill Cornell provides pain management expertise. New York Medicaid covers genetic testing with prior authorization. Wait times at major programs can be 6 months or longer.
Both EDS Centers of Excellence are on Long Island, leaving upstate New York significantly underserved. Patients in Buffalo, Syracuse, Rochester, and the Adirondacks face drives of 4-6+ hours to reach these programs. Wait times of 6 months or more are common. Rural upstate access is very limited, and telehealth is important for follow-up care.
Finding Mental Health for EDS
Look for a therapist who has worked with chronic illness patients and understands that EDS-related anxiety and depression often have physical triggers, not just psychological ones.