Louisa O'Grady Nutrition LLC
About
I provide personalized nutrition counseling for individuals navigating EDS, POTS, and MCAS. As a fellow Zebra, I understand the daily challenges these conditions bring. My approach focuses on practical, realistic strategies to improve symptoms, without restrictive diets or overwhelming protocols. I offer in-person appointments in Connecticut and virtual sessions for clients across the country.
EDS Healthcare in New York
The NYIT EDS/Hypermobility Treatment Center operates in Old Westbury and Central Islip, offering specialized rehabilitation and treatment. Mount Sinai South Nassau Chiari EDS Center in Oceanside focuses on EDS with Chiari malformation. Weill Cornell provides pain management expertise. New York Medicaid covers genetic testing with prior authorization. Wait times at major programs can be 6 months or longer.
Both EDS Centers of Excellence are on Long Island, leaving upstate New York significantly underserved. Patients in Buffalo, Syracuse, Rochester, and the Adirondacks face drives of 4-6+ hours to reach these programs. Wait times of 6 months or more are common. Rural upstate access is very limited, and telehealth is important for follow-up care.
Finding Nutrition / Dietetics for EDS
Ask whether the dietitian has experience with the EDS-related conditions that affect eating, including gastroparesis, MCAS food triggers, and SIBO.