Lake Nona Behavioral Health
About
Susan is a Registered Clinician Social Work Intern with experience working with children and teens diagnosed with hypermobility EDS. Susan works with children ages 3-15 and their families to help provide comfort and mental health support.
EDS Healthcare in Florida
Mayo Clinic Jacksonville's dedicated EDS Clinic is an EDS Society Center of Excellence and serves as the anchor for EDS care in the Southeast. The Florida Association of Genetic Counselors supports genetic testing access statewide. Florida Medicaid covers genetic testing for connective tissue disorders with documented medical necessity.
Florida's size creates significant access disparities. The Mayo Clinic EDS program is in Jacksonville, which means patients in South Florida, Tampa Bay, or the Panhandle face drives of 4-8 hours. Wait times at the Mayo Clinic EDS Clinic can be 6 months or more. Telehealth follow-ups can help after an initial in-person evaluation.
Finding Mental Health for EDS
Look for a therapist who has worked with chronic illness patients and understands that EDS-related anxiety and depression often have physical triggers, not just psychological ones.