Ignite Well-being, PLLC
About
I am a physical therapist and have my own business where I specialize in fitness and wellness offerings for clients, including personal training (a great way to maintain and progress goals following traditional therapy), yoga, motivational interviewing, stress management, sleep hygiene, and sexuality counseling and coaching. My offerings are suited for both virtual or in-person options. Please note: I have EDS (as well as related conditions such as POTS and dysautonomia) so I have personal experience with this condition. Emailing me is the best way to reach me, or clients can schedule with me online via Calendly https://calendly.com/ignitewellbeing-naperville If you are interested in traditional physical therapy and utilizing insurance, I am able to work with you at a clinic in Bolingbrook, with limited availability. Fyzical Therapy and Balance Centers – Bolingbrook, 140 E Boughton Rd, Bolingbrook, IL 60440, 630-444-7374
EDS Healthcare in New York
The NYIT EDS/Hypermobility Treatment Center operates in Old Westbury and Central Islip, offering specialized rehabilitation and treatment. Mount Sinai South Nassau Chiari EDS Center in Oceanside focuses on EDS with Chiari malformation. Weill Cornell provides pain management expertise. New York Medicaid covers genetic testing with prior authorization. Wait times at major programs can be 6 months or longer.
Both EDS Centers of Excellence are on Long Island, leaving upstate New York significantly underserved. Patients in Buffalo, Syracuse, Rochester, and the Adirondacks face drives of 4-6+ hours to reach these programs. Wait times of 6 months or more are common. Rural upstate access is very limited, and telehealth is important for follow-up care.
Finding Movement / Exercise for EDS
Look for instructors with specific hypermobility training who modify exercises to build strength within safe joint range rather than pushing flexibility.