HighBar Health
About
HighBar Health in Middletown, RI is a physical therapy provider specializing in care for Ehlers-Danlos syndrome and hypermobility conditions.
EDS Healthcare in Rhode Island
Rhode Island does not have an EDS Society Center of Excellence or dedicated EDS program. Boston Children's Hospital's Connective Tissue Disorders Program and Massachusetts General Hospital are the nearest major resources, both within about an hour from Providence. Brown University's Warren Alpert Medical School has some genetics resources through Rhode Island Hospital.
Rhode Island's compact geography means that most patients can reach Boston-area specialists within an hour. The main challenges are wait times at Boston programs and insurance considerations for out-of-state care. Rhode Island's small size means finding local EDS-experienced providers is difficult.
Finding Physical Therapy for EDS
When choosing a PT for EDS, ask whether they have experience with hypermobility and use stabilization-first protocols rather than standard stretching routines.