Good Shepherd Penn Partners
About
Good Shepherd Penn Partners is a other provider in Bala Cynwyd, Pennsylvania with experience treating Ehlers-Danlos Syndrome.
EDS Healthcare in Pennsylvania
Penn State Health's EDS Program in Hershey is an EDS Society Center of Excellence. CHOP in Philadelphia operates both a Cardiovascular Connective Tissue Disorders Clinic and the Roberts Individualized Medical Genetics Center (Roberts IMGC). Penn Medicine in Philadelphia has additional EDS resources. The Pennsylvania Association of Genetic Counselors supports genetic testing access statewide.
Central and eastern Pennsylvania have strong resources, but western Pennsylvania (Pittsburgh area) and the rural northeast have limited dedicated EDS programs. Pittsburgh patients may find programs in Columbus, Ohio or at IU Health in Indianapolis more accessible than traveling to Hershey or Philadelphia.
Finding Other for EDS
Mention your EDS diagnosis at the start of any appointment so the provider can factor connective tissue fragility into their evaluation and treatment approach.