Existence Health
About
Comprehensive genetic testing and whole genome sequencing (WGS) services.
EDS Healthcare in California
Casa Colina Hospital in Pomona and Re+active Therapy in El Segundo are both EDS Society Centers of Excellence. Stanford has a Cardiovascular Connective Tissue Disorders Program, UC Davis runs a Connective Tissue Clinic, and UCSF offers Medical Genetics services. Children's Hospital Los Angeles has a Pediatric Bone Disorders Program, and Dao Integrated Health in San Francisco provides EDS-focused treatment.
Despite California's strong urban specialist density, patients in the Central Valley, northern rural areas, and inland regions face long travel times to reach EDS-knowledgeable providers. Wait times at major programs can be 3-6 months or longer. Medi-Cal covers genetic testing with medical necessity, but navigating the referral process can be time-consuming.
Finding Genetics / Genetic Counseling for EDS
Ask whether the geneticist evaluates for all EDS subtypes and can coordinate genetic testing with your insurance before ordering panels.