Erin Scanlon
About
At Diekman Dysautonomia, We Prioritize Your Voice, Ensuring It’s Not Just Heard But Deeply Understood By Our Dedicated Medical Professionals. At Diekman Dysautonomia, Your Voice Will Be Heard By Our Medical Team.
EDS Healthcare in Minnesota
Mayo Clinic Rochester's Connective Tissue Disorder Clinic and Clinical Genomics program is the primary EDS resource in Minnesota and one of the most comprehensive in the nation. Mayo offers multidisciplinary evaluation that can address the full spectrum of EDS symptoms. The Minnesota Genetic Counselors Association supports genetic testing access statewide.
While Mayo Clinic Rochester is a world-class resource, it draws patients nationally, which means wait times can be significant. Patients in northern and western Minnesota face long drives to Rochester. Mayo Clinic's integrated model means that once you are in their system, care coordination tends to be efficient.
Finding Rheumatology for EDS
Ask whether the rheumatologist uses the 2017 hEDS diagnostic criteria and has experience distinguishing EDS from other hypermobility spectrum disorders.