EDS Clinic
Multi-Specialty / EDS Clinic
Rheumatology
Hypermobility
POTS / Dysautonomia
MCAS
Chronic Pain
GI Issues
Neurological
About
Based in South Bend, Indiana, this multi-specialty / eds clinic practice focuses on hypermobility, POTS and dysautonomia and more. Quality medical care and support for Ehlers Danlos Syndrome, Mast Cell Activations Syndrome, POTS, and related conditions
EDS Healthcare in New York
The NYIT EDS/Hypermobility Treatment Center operates in Old Westbury and Central Islip, offering specialized rehabilitation and treatment. Mount Sinai South Nassau Chiari EDS Center in Oceanside focuses on EDS with Chiari malformation. Weill Cornell provides pain management expertise. New York Medicaid covers genetic testing with prior authorization. Wait times at major programs can be 6 months or longer.
Both EDS Centers of Excellence are on Long Island, leaving upstate New York significantly underserved. Patients in Buffalo, Syracuse, Rochester, and the Adirondacks face drives of 4-6+ hours to reach these programs. Wait times of 6 months or more are common. Rural upstate access is very limited, and telehealth is important for follow-up care.
Finding Multi-Specialty / EDS Clinic for EDS
Check whether the clinic is recognized by the EDS Society as a Center of Excellence or Network of Excellence, and ask which specialties are available on-site versus referred out.