CMB Counseling, PLLC
About
I am a licensed clinical social worker that provides mental health support for those in the chronic illness communities, specializing in patients with hEDS, endometriosis, infertility, and pregnancy loss. I have an office in Wilmington, North Carolina, where I can see patients in person, but most of my practice is through Telehealth, where I not only see patients throughout North Carolina state, but also see patients in South Carolina and Florida.
EDS Healthcare in New York
The NYIT EDS/Hypermobility Treatment Center operates in Old Westbury and Central Islip, offering specialized rehabilitation and treatment. Mount Sinai South Nassau Chiari EDS Center in Oceanside focuses on EDS with Chiari malformation. Weill Cornell provides pain management expertise. New York Medicaid covers genetic testing with prior authorization. Wait times at major programs can be 6 months or longer.
Both EDS Centers of Excellence are on Long Island, leaving upstate New York significantly underserved. Patients in Buffalo, Syracuse, Rochester, and the Adirondacks face drives of 4-6+ hours to reach these programs. Wait times of 6 months or more are common. Rural upstate access is very limited, and telehealth is important for follow-up care.
Finding Mental Health for EDS
Look for a therapist who has worked with chronic illness patients and understands that EDS-related anxiety and depression often have physical triggers, not just psychological ones.