Beacon Medical Group
About
Hello! I’m a staff physical therapist at Beacon Medical Group, working in an outpatient orthopedics clinic alongside a collaborative team of physical therapists and physical therapist assistants. I prioritize compassionate, patient-centered care and have a special interest in working with individuals with connective tissue disorders, including Ehlers-Danlos syndrome, Stickler syndrome, Marfan syndrome, and Loeys-Dietz syndrome. I treat adults of all ages as well as adolescents age 12 and older. In addition to clinical practice, I am actively involved in research related to connective tissue disorders, serve on the Loeys-Dietz Syndrome Foundation Steering Committee, speak at The Marfan Foundation’s national conference, and personally live with Loeys-Dietz syndrome type 4.
EDS Healthcare in New York
The NYIT EDS/Hypermobility Treatment Center operates in Old Westbury and Central Islip, offering specialized rehabilitation and treatment. Mount Sinai South Nassau Chiari EDS Center in Oceanside focuses on EDS with Chiari malformation. Weill Cornell provides pain management expertise. New York Medicaid covers genetic testing with prior authorization. Wait times at major programs can be 6 months or longer.
Both EDS Centers of Excellence are on Long Island, leaving upstate New York significantly underserved. Patients in Buffalo, Syracuse, Rochester, and the Adirondacks face drives of 4-6+ hours to reach these programs. Wait times of 6 months or more are common. Rural upstate access is very limited, and telehealth is important for follow-up care.
Finding Physical Therapy for EDS
When choosing a PT for EDS, ask whether they have experience with hypermobility and use stabilization-first protocols rather than standard stretching routines.