Be Balanced Counseling, LLC
About
I have hEDS myself. Additionally, I have extensive psychotherapy training and certifications in trauma modalities (EMDR and IFS). This included relational and developmental trauma, medical trauma, single incident trauma, and complex trauma. I am trained in DBT therapy which I use to teach clients tangible skills in the areas of mindfulness, emotions regulation, interpersonal skills, and managing distressing emotions and situations. I also have personal experience in navigating and coping with the multi-faceted challenges that exist with having EDS as well as managing the complexities of the medical system.
EDS Healthcare in New York
The NYIT EDS/Hypermobility Treatment Center operates in Old Westbury and Central Islip, offering specialized rehabilitation and treatment. Mount Sinai South Nassau Chiari EDS Center in Oceanside focuses on EDS with Chiari malformation. Weill Cornell provides pain management expertise. New York Medicaid covers genetic testing with prior authorization. Wait times at major programs can be 6 months or longer.
Both EDS Centers of Excellence are on Long Island, leaving upstate New York significantly underserved. Patients in Buffalo, Syracuse, Rochester, and the Adirondacks face drives of 4-6+ hours to reach these programs. Wait times of 6 months or more are common. Rural upstate access is very limited, and telehealth is important for follow-up care.
Finding Mental Health for EDS
Look for a therapist who has worked with chronic illness patients and understands that EDS-related anxiety and depression often have physical triggers, not just psychological ones.