Aspen Family Medicine
About
Have been treating hEDS patients for over 10 years. We have Core Network at Casa Colina in Pomona CA where I act as the medical director
EDS Healthcare in California
Casa Colina Hospital in Pomona and Re+active Therapy in El Segundo are both EDS Society Centers of Excellence. Stanford has a Cardiovascular Connective Tissue Disorders Program, UC Davis runs a Connective Tissue Clinic, and UCSF offers Medical Genetics services. Children's Hospital Los Angeles has a Pediatric Bone Disorders Program, and Dao Integrated Health in San Francisco provides EDS-focused treatment.
Despite California's strong urban specialist density, patients in the Central Valley, northern rural areas, and inland regions face long travel times to reach EDS-knowledgeable providers. Wait times at major programs can be 3-6 months or longer. Medi-Cal covers genetic testing with medical necessity, but navigating the referral process can be time-consuming.
Finding Primary Care / Internal Medicine for EDS
Look for a PCP willing to serve as your care coordinator across multiple specialists and who screens for EDS cardiovascular, GI, and neurological complications at regular intervals.