Anthurium
About
We are a chronic and complex neurological disease clinic with a focus on EDS. We offer both diagnostic and therapeutic services and help patients navigate the many complex physical and emotional challenges that face the EDS patient population.
EDS Healthcare in New York
The NYIT EDS/Hypermobility Treatment Center operates in Old Westbury and Central Islip, offering specialized rehabilitation and treatment. Mount Sinai South Nassau Chiari EDS Center in Oceanside focuses on EDS with Chiari malformation. Weill Cornell provides pain management expertise. New York Medicaid covers genetic testing with prior authorization. Wait times at major programs can be 6 months or longer.
Both EDS Centers of Excellence are on Long Island, leaving upstate New York significantly underserved. Patients in Buffalo, Syracuse, Rochester, and the Adirondacks face drives of 4-6+ hours to reach these programs. Wait times of 6 months or more are common. Rural upstate access is very limited, and telehealth is important for follow-up care.
Finding Other for EDS
Mention your EDS diagnosis at the start of any appointment so the provider can factor connective tissue fragility into their evaluation and treatment approach.