Editorial Team

About Our Team

The EDS Directory Editorial Team researches and writes all content on this site. Our goal is to provide accurate, useful information for people navigating the Ehlers-Danlos Syndrome healthcare landscape.

Our Editorial Process

All articles and blog posts on this site go through a structured editorial process:

• Research: Content is developed using peer-reviewed medical literature, clinical guidelines, and established sources including the Ehlers-Danlos Society, GeneReviews, MedlinePlus, and the NIH.
• Sourcing: Every article includes a sources section with citations to the medical literature and professional resources referenced.
• Review: Content is reviewed for accuracy before publication and updated when new evidence or guidelines become available.
• Corrections: If we get something wrong, we correct it. Readers can report errors through our contact page.

How Listings Are Sourced

Providers in this directory are identified through a combination of sources: the Ehlers-Danlos Society provider database, Google Maps searches for EDS-related specialties, Yelp healthcare listings, and recommendations from EDS patient communities. Each listing is reviewed to confirm the provider offers services relevant to EDS patients.

Medical Review Statement

The content on this site is intended for informational purposes only and does not constitute medical advice. While we strive for accuracy by referencing peer-reviewed sources, our content has not been reviewed by a licensed physician. We encourage readers to discuss any medical decisions with their healthcare provider.

Contact

Questions about our editorial process? Get in touch.