EDS Specialists in Denver: A Complete Local Guide

If you're searching for EDS-aware providers in Denver, the city has more to offer than you might expect. There's a Center of Excellence for pediatric care at Children's Hospital Colorado, experienced adult providers in the metro, and enough overall density that it's worth doing a real search before assuming you have to travel. This guide is a friendly walkthrough of where to look, who tends to help, and how to widen the search when you need to.

Browse EDS providers in Denver →

Where to start your search

Most people end up building a small team of providers rather than finding one doctor who handles everything. The quickest way in is usually three places at once.

• Our directory lists Denver-area providers who have been flagged as EDS-aware, grouped by specialty and city.
• The Ehlers-Danlos Society's Healthcare Professionals Directory is the most widely trusted national list. Filter by Colorado and the specialty you want.
• Peer recommendations — from local support groups and online communities — are often the fastest way to find out who people actually like.

Our directory currently lists 19 providers in Denver proper and 54 across the state, spread through Boulder, Colorado Springs, Arvada, Aurora, Littleton, Wheat Ridge, Fort Collins, Englewood, and a handful of other cities. Rheumatology, physical therapy, and chiropractic care are the best-represented specialties.

Browse all Colorado providers → · Browse directory categories →

Providers and programs worth knowing about

Children's Hospital Colorado — Special Care Clinic

The Special Care Clinic at Children's Hospital Colorado in Aurora is an officially designated EDS Society Center of Excellence — one of a handful worldwide. Directed by Dr. Ellen Roy Elias, MD, it's a multidisciplinary program covering genetics, neurology, cardiology, orthopedics, and rehab, all under one roof. As a children's hospital it's focused on pediatric patients, though some young adults may be seen.

For families of a child with EDS or suspected EDS, this is one of the stronger starting points in the country.

Center for Multisystem Disease — Dr. Jill Schofield

For adults in Denver, Dr. Jill R. Schofield, MD at the Center for Multisystem Disease (8101 E. Lowry Blvd., Suite 250) is one of the best-known local names. She's listed in the Ehlers-Danlos Society's directory. The practice is cash-only; new-patient consultations are long and unhurried, and the office provides a superbill for possible out-of-network reimbursement. Follow-ups are often available by telehealth.

National Jewish Health

National Jewish Health's Rheumatology division in Denver doesn't have a dedicated EDS program, but their rheumatologists see patients with connective tissue conditions. A reasonable option if you'd like to be seen at a well-known institution.

Denver Health

Denver Health has multiple rheumatologists who see patients with connective tissue conditions. For patients on Medicaid or without insurance, this is often a more accessible entry point than private practice.

The EDS Clinic (telehealth)

The EDS Clinic (eds.clinic) is one of the larger EDS-focused telehealth practices in the country and sees Colorado residents by video. A useful bridge while you wait on local availability. They don't currently accept insurance.

Widening the search

If the local options feel thin — or if waitlists are long — there are a few ways to expand the search without getting overwhelmed.

• Telehealth. A growing number of EDS-focused clinics see Colorado patients by video. This can get the process moving while you wait on an in-person spot.
• A different specialty. If a geneticist has a year-long waitlist, try a rheumatologist or a physical therapist first. Not every step has to wait on a geneticist.
• Travel for the first visit. Some people plan a single comprehensive trip to a major EDS program and then carry out the plan with local providers afterward. One long trip can set up years of care.
• A nearby city. Colorado Springs, Boulder, and Fort Collins all have providers in our listings. Don't limit the search to a single ZIP code.

The kinds of providers to look for

EDS care is usually spread across a small team. The categories that come up most often in people's search are:

• Rheumatologists
• Geneticists and genetic counselors
• Physical therapists
• Pain management specialists and physiatrists
• Cardiologists
• Gastroenterologists
• Counselors or therapists who understand chronic illness

You don't need them all at once. Start with one or two and add as you go. Your primary care doctor is often a good person to ask which direction to head first.

What to ask before you book

A short call before scheduling saves a lot of time. A few practical questions do most of the work:

• "Do you currently see patients with EDS?"
• "How familiar is your practice with EDS?"
• "Do you coordinate with other specialists, or do patients handle referrals themselves?"
• "Are you in-network for my insurance?"

The best sign is a provider who listens, takes the condition seriously, and is willing to work with the rest of your team. A great EDS provider doesn't need to know everything — they need to be curious, engaged, and honest when something isn't in their wheelhouse.

One Denver-specific note: ask about insurance and payment policies upfront, because some of the area's most EDS-focused practices are cash-pay or out-of-network.

What to bring to the first visit

EDS appointments are complex and the clock moves fast. A little prep makes a big difference.

• A short, written summary of your current situation, past diagnoses, medications, and known allergies. Two or three pages, not a binder.
• A brief family history, if you think it may be helpful.
• One or two specific goals for the visit. "Find a PT recommendation" is more useful than "figure out my health."
• A support person if you can bring one. An extra set of ears helps enormously.
• Any recent records that may be useful. Don't bring everything — bring what matters.

A few Denver-specific tips

Use both directories. Our Colorado listings and the Ehlers-Danlos Society directory catch slightly different providers, so both are worth a scan.

Connect with the Colorado EDS community. The Ehlers-Danlos Colorado Support Group on Facebook has more than 1,500 members and is listed as an official Society affiliate. Peer referrals are often faster and more honest than any search engine.

Don't wait on one office. If you know you need several kinds of providers, put in calls to a few of them in the same week. It's the single most practical thing you can do to speed up the process.

Plan for the metro's spread. Denver-area patients sometimes end up with providers in Aurora, Englewood, or Wheat Ridge. A short drive in a different direction is often worth it.

Getting started

Denver offers more EDS resources than most cities — a Center of Excellence at Children's Hospital Colorado, a well-known adult provider in Dr. Jill Schofield, a solid rheumatology scene, and telehealth options that work across the state. The key is knowing where to start. Use the directories, connect with the Colorado community, and build your team one provider at a time.

Browse EDS providers in Denver → · All Colorado providers → · Ehlers-Danlos Society directory →

Sources

• The Ehlers-Danlos Society. Centers and Networks of Excellence.
• The Ehlers-Danlos Society. Healthcare Professionals Directory.
• The Ehlers-Danlos Society. Ehlers-Danlos Colorado Support Group.